Group psychosocial program for enhancing psychological well-being of people with systemic lupus erythematosus

Abstract

Emotional ups and downs are common among people with Systemic Lupus Erythematosus (SLE) as they live with fears about treatment, pain from the illness and unexpected “flare-ups.” The side effects of medications have a severe impact on their self-esteem and lead to psychological distress. This paper reports a study on the impact of a psychosocial group program on the self-esteem and psychosocial functioning of people with SLE. A total of 56 people with SLE were recruited to participate in a 6-week, 2.5-hour weekly session psychosocial group. The group served to equip members with knowledge and skills to cope with SLE and stress arising from the illness, to enhance their self-confidence and develop a positive attitude toward the illness, and to enhance their social support network. The members were assessed before the commencement and during the last session of the groups with Rosenberg's Self-esteem Inventory and General Health Questionnaire (GHQ-30). Results showed that members obtained better scores in self-esteem (p < 0.001) and GHQ (p < 0.001) after the group. The study revealed significant positive changes in self-esteem and psychosocial functioning of people with SLE after the psychosocial group program. The implications for psychosocial programs for people with SLE are discussed.