Voices of stroke spousal caregivers on positive aspects of caregiving

Abstract

Objective: Stroke is the second leading cause of death and first cause of adult disability globally. Yet, about two-thirds of survivors may live for 20 to 38 years with spouses commonly serve as the primary caregivers. This study aims to examine positive aspects of caregiving as constructed by spousal carers. Method: 68 Hong Kong Chinese caregivers provided 707 diary recordings over an 8-week period. The narratives were analyzed independently by two researchers using thematic analysis. Findings: Six themes were identified: (a) having sense of purposes for and commitment to the care-recipient (CR), (b) having a sense of mastery and satisfaction when the CR was functioning better, (c) finding ways and having hope for CR’s improvement, (d) cultivating positive meanings in caregiving, (e) accepting the losses, and (f) cherishing of what are still available. The results strengthen the resilience constructs and practice implications on spousal caregiving in later life challenges.