Chan, Yin Shan, KateYin Shan, KateChan2018-01-172018-01-1720172017http://hdl.handle.net/20.500.11861/4924Hong Kong Shue Yan University. Dept. of Counselling and Psychology.Thesis (M.Soc.Sc.) -- Hong Kong Shue Yan University, 2017.Includes bibliographical references (p. 66-70).vi, 151 p.The study explored the life stories of two Morquio A syndrome (Mucopolysaccharidosis Type IVA) patients through narrative research, their lives were summarized and divided into six major phases: normal appearance at birth, discovery of bone abnormalities and diagnosis of Morquio A, surgeries at early ages, life with the ambiguity of Morquio A, experiencing partial loss of organ function and limited functioning, and coping with the illness. The finding also gained deeper understanding of patients’ personal experiences; and discovered their coping strategies including problem-focused coping, emotional-focused coping and cognition-focused coping. Furthermore, the information collected fills in the research gap and can serve as foundations for developing future specific services for this group of population.engMucopolysaccharidosis Patients China Hong Kong.Parent and child China Hong Kong.Interpersonal relations.Thesis